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hoserdude
Unread post  Post subject: When to change sleep Doctors?  |  Posted: Mon Jul 09, 2018 6:59 am

Joined: Wed Sep 07, 2016 8:57 am
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I'm curious does anyone have any thoughts ( I have seen a number of folks post less than glowing reports on their sleep treaters) on how long to stick with and when to change sleep specialists? And even to which kind... pulmonologist, otolaryngologist, sleep centers or maybe just try sleepy from Disney ?? Thanks!


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Tinman
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Mon Jul 09, 2018 8:59 am

Joined: Thu Jul 05, 2018 2:49 pm
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From my own experience, I first visited a Sleep Doc about 12 years ago. Did a sleep study, then was scheduled for a follow up appointment. When I got to his office I waited about 35 minutes beyond my scheduled time then asked the receptionist how much longer it would be. She told me at least 90 minutes!!! At the time our area was in the middle of a special event which brings in lots of people (Daytona Bike Week) and I needed to get back to work so I left. Never heard from his office again, then got a call to go to the DME supplier and pick up my CPAP. Never received any contact or follow up and never bothered to call him back.

This time I made an appointment with a Pulmonologist who specializes in sleep medicine. So far, so good. I have a sleep study scheduled for next week.

About 7 years ago I fired my Primary Care Physician and started going to a new doctor. Doing so saved my life and I learned a very valuable lesson. Your medical team works for you! You hire them (maybe through an insurance company, but you pay for it). If they aren't willing to spend the time you need to understand issues affecting you, fire them!

Good luck and hope you find one that works with you.


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Mon Jul 09, 2018 11:57 am

Joined: Wed Sep 07, 2016 8:57 am
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Location: Floriduh
PAP Mask: Philips Dreamwear under nose Nasal mask
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Appreciate the response glad to hear things working out! Not really clear on what you are saying however. Do you mean that you have been using cpap on your own for the last 7 years? Or you are now about to have a sleep study and possibly begin treatment?


I guess my question is geared more towards those that have been receiving treatment for some period of time and may be dissatisfied with them (or just are unsure) with the results they are getting. Basically how long should you stick with a Dr. that may not be getting results quickly enough?

Are we all supposed to all be under 2-5 ahi? Is that the absolute gold standard here? Looks to me like there are a lot of folks on the forum seem concerned when their numbers are anywhere above 1.5 ahi based on some of these sleepyhead charts I've seen. My monthly's are still running from 4-9 ahi average and all my guy wants to do is keep jacking up my pressure.

Anyway just trying to get a feel for what to expect after doing this for a couple years without getting too far bogged down in the minutiae. Thanks all.


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 8:18 am

Joined: Wed Sep 07, 2016 8:57 am
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No thoughts out there or is everyone doing it DIY? lol


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Tinman
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 1:56 pm

Joined: Thu Jul 05, 2018 2:49 pm
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I had a sleep study initially but no follow up care. My previous doctor was pretty much useless. My point is to make sure you are comfortable with the medical team you hire to help you.


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LSAT
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 4:32 pm

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Haven't seen a "sleep doctor" since he got me started on CPAP 10 years ago. DIY with Sleepyhead.


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 5:01 pm

Joined: Wed Sep 07, 2016 8:57 am
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Thanks Tinman appreciate your input!


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 5:29 pm

Joined: Wed Sep 07, 2016 8:57 am
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Thanks LSAT ya guess I'm becoming "sleepy Dr." averse at this stage! I guess I will have to delve into trying to understand sleepyhead after 2+ years.

Seems the only thing this guy wants to do is ratchet up the pressure or order sleep studies. (I had three originally and didn't fall asleep during any of them) Anyway he started me on the bipap because he said that is what I needed and I guess we have been winging it ever since. I asked about the asv units instead of bipap and he said that they aren't as good for some reason. Thing is the monthly average ahi numbers are still pretty much the same as when I started 2years ago even with the pressure hikes.
So It seems like I should make a change or if I continue I may have my head expanded to the size of a Macy's day parade float.


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diamaunt
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 6:57 pm
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hoserdude wrote:
No thoughts out there or is everyone doing it DIY? lol

DIY here, from the beginning.

_________________
https://sleep.tnet.com/resources/sleepyhead
how to post:
https://sleep.tnet.com/resources/sleepyhead/shorganize
https://sleep.tnet.com/reference/tips/imgur


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OldSarge
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Tue Jul 10, 2018 9:01 pm

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It's the same answer for and primary or specialist doctor. You are trusting your health with your doctor. If you do not trust your doctor or his staff, it is time for a change. You decide when that change is based on your feelings. I feel board certified pulmonologists that are also certified in sleep medicine are the best sleep docs.


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Wed Jul 11, 2018 7:12 am

Joined: Wed Sep 07, 2016 8:57 am
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Appreciate the feedback folks!


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Thu Jul 12, 2018 8:40 am

Joined: Wed Sep 07, 2016 8:57 am
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WTF? Jobs in Pakistan? Time to hit the report button I guess.


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Pugsy
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Fri Jul 13, 2018 11:12 am
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The offending forum member wanting you to go to work in Pakistan will no longer be to post under that account name and his report and post is now gone and his account useless to him.


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hoserdude
Unread post  Post subject: Re: When to change sleep Doctors?  |  Posted: Sat Jul 14, 2018 2:13 pm

Joined: Wed Sep 07, 2016 8:57 am
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Lol thx Pugsy!


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