FAQ
It is currently Sat May 26, 2018 8:05 pm

Shop Amazon and Support FreeCPAPAdvice

Please consider a small donation to FreeCPAPAdvice.com above, through Patreon, or using the Amazon Shopping link above when you purchase through Amazon. Thank you so much for your support!

Click the Patreon link and Sponsor FreeCPAPAdvice.com

Author Message
CookieJ
Unread post  Post subject: Fibro  |  Posted: Tue Sep 05, 2017 9:22 am

Joined: Tue Sep 05, 2017 7:46 am
Posts: 6

Offline
Hi

I suffer with fibromyalgia and sleep is a big problem for me. I am wondering if I may have OSA. Well, Im almost hoping I am, at least it would be something that could be treated and maybe make me feel better. I am wondering if I have been misdiagnosed. Have you any up to date information on how each affects the other? Was a bit bizarre how I considered OSA being a factor. I was actually trying to find out what was waking me up everynight. I recorded the thumps (no idea what they are) but was quite shocked to hear a lot of gasping choking noises too. I have no idea what Im looking for but did download an app to record my snoring (I bet you love people doing that lol) and have found some pauses that Im looking into. I dont really want to see gp yet as probably completely nothing to do with apnea, but have been interested in that and the fibro symptoms. Any help would be much appreciated ;)

Julie


Top
cindyY
Unread post  Post subject: Re: Fibro  |  Posted: Tue Sep 05, 2017 4:20 pm

Joined: Sun Apr 23, 2017 8:34 pm
Posts: 421
Location: Southern California
PAP Mask: AirFit P10, Swift FX, Swift FX Nano, Eson2
PAP Machine: Resmed AirCurve 10 VAuto in S mode
Humidifier: Integrated set to 5 @ 81F; ClimateLineAir heated hose
Pressure Setting: IPAP 19 EPAP 15

Offline
These are the signs of sleep apnea:
-Snoring (but not always)
-Dry Mouth
-Sore Throat
-Hypertension
-Morning Headaches
-Daytime Fatigue/Somnolence
-Memory and Concentration Problems

I also had night sweats and muscle fatigue. We actually just had this conversation in another thread so it was really easy to compile the list. :D

You should see your doctor as soon as possible, sometimes it takes months to get the sleep study scheduled.


Top
TheLankyLefty
Unread post  Post subject: Re: Fibro  |  Posted: Tue Sep 05, 2017 9:11 pm
User avatar
Site Admin

Joined: Mon Aug 15, 2011 10:22 am
Posts: 4611
PAP Mask: Practically tried them all.
PAP Machine: Use Phillips Respironics System One APAP with Aflex for mask testing
Humidifier: None
Pressure Setting: When testing, I use APAP with a range of 5-10

Offline
I have a page on that on my website. Here is the link for easy access: http://freecpapadvice.com/fibromyalgia-and-sleep

Great examples of PSGs. Bad news is that Delta sleep is extremely fragmented from Alpha Delta. So little is known about it. My theory is that it's a sleep disorder that the Alpha-Delta sleep doesn't allow for proper healing while you sleep, and so you get the symptoms of fibromyalgia.

To my knowledge there isn't a way to improve Delta sleep in these patients. :(

_________________
TheLankyLefty
http://www.youtube.com/TheLankyLefty27
Consider being our Patreon: https://www.patreon.com/FreeCPAPAdvice
Shop Amazon and help out FreeCPAPAdvice by using this link: http://amzn.to/2dY19oA
Information on FreeCPAPAdvice.com should not be considered medical advice. Seek your physicians advice before seeking treatment for medical conditions. Information posted on the FreeCPAPAdvice.com website and forum is opinion and not statements of fact.


Top
CookieJ
Unread post  Post subject: Re: Fibro  |  Posted: Wed Sep 06, 2017 7:22 am

Joined: Tue Sep 05, 2017 7:46 am
Posts: 6

Offline
Hi

Thank you both for your replies. I have a review with my gp in couple of weeks so will carry on recording on my app and take any results with me and see what he thinks. I wasnt asked about sleep in depth when I was diagnosed and all my symptons were put down to fibro. I have terrible restless legs and thats my worst symptom. Also have a sore throat with sometimes a sore that I can see which was put down to Gerd after originally having a diagnosis of nasal drip, so what with pain 24/7 its not much fun :cry: I have noticed though that I feel so much better when I sleep well, especially if my room is very cold, a shame its only a handful of times a year. Im still not sure with the fibro diagnosis, so many symptoms and everyones different. I feel like they have put me in the dont know pile, lets assume its fibro!
If theres a definate change in how our sleep waves are different and having this on paper I cant understand why this hasnt been investigated further. Never mind, theres new information every day and hopefully it wil be better understood soon.
I did watch the film on your website and found it interesting and I think Im leaning to the fibro being caused by the disturbed sleep pattern :)

Thank you

Julie


Top
Pugsy
Unread post  Post subject: Re: Fibro  |  Posted: Wed Sep 06, 2017 7:32 am

Joined: Wed Aug 02, 2017 8:01 pm
Posts: 554
PAP Mask: ResMed AirFit P10 or DreamWear Gel nasal pillows
PAP Machine: ResMed AirSense 10 AutoSet for Her
Humidifier: ResMed AirSense 10
Pressure Setting: Depends on the machine as I actually have more than one

Offline
CookieJ wrote:
I have noticed though that I feel so much better when I sleep well,


Chronic pain is fatiguing. Even if it isn't necessarily the level of pain intensity that require hard core pain relievers.
On the rare nights where a person does get decent sleep the body is better able to handle the chronic pain situation and not get so fatigued and worn out and we actually feel like doing something.
Add poor sleep for any reason on top of chronic pain and you have a recipe guaranteed to mean a person feels like crap.

It sucks. I have been there myself but I don't have the fibro diagnosis. I have some pain issues that have a different name causing them.
Doesn't matter what causes it though...the end result is crappy sleep and we end up going on a vicious circle ride.
Figuring out what to do to help the sleep quality isn't easy to do or to implement.


Top
cindyY
Unread post  Post subject: Re: Fibro  |  Posted: Wed Sep 06, 2017 8:36 am

Joined: Sun Apr 23, 2017 8:34 pm
Posts: 421
Location: Southern California
PAP Mask: AirFit P10, Swift FX, Swift FX Nano, Eson2
PAP Machine: Resmed AirCurve 10 VAuto in S mode
Humidifier: Integrated set to 5 @ 81F; ClimateLineAir heated hose
Pressure Setting: IPAP 19 EPAP 15

Offline
Oh, forgot to mention the frequent nighttime urination as a symptom of sleep apnea, so is gerd/acid reflux.


Top
CookieJ
Unread post  Post subject: Re: Fibro  |  Posted: Wed Sep 06, 2017 8:43 am

Joined: Tue Sep 05, 2017 7:46 am
Posts: 6

Offline
Sorry you suffer too Pugsy. Hope things arent too bad for you at the minute. Im struggling to get out of a very low time. Everything feels rubbish and not had any signs of improvement yet. I am begining to dread bedtime. RLS is starting 7 30 every night end up pacing up and down till bedtime. Then the itching starts! Tossing and turning, in bed out of bed, in the garden (cold floor) and back in bed. Im lucky if I drop off before 2 and most nights half a dozen pees! Awake at 6 to paint on that smile. People dont appreciate how completely knackered I am :(
Sorry, have had my rant and feel better lol.

Thank you x


Top
CookieJ
Unread post  Post subject: Re: Fibro  |  Posted: Wed Sep 06, 2017 8:48 am

Joined: Tue Sep 05, 2017 7:46 am
Posts: 6

Offline
Thank you CindyY. Yes I have reflux, even though on ppi's and Gaviscon and I do visit bathroom a lot at night. I have lots to think about :)


Top
WearyOne
Unread post  Post subject: Re: Fibro  |  Posted: Wed Oct 18, 2017 10:50 am

Joined: Fri Feb 01, 2013 9:17 pm
Posts: 3
Location: Virginia
PAP Mask: Innomed Hybrid
PAP Machine: PR System One 60 Series Heated Tube Humidifier with Heated Tube
Pressure Setting: APAP 9 -10.5

Offline
I have fibro as well OSA, but the pain part I would consider to be on the mild side most of the time. When I'm in a flare,I also have a huge increase in my normal fatigue. (I don't know how this is a factor, but having lot 40 pounds my flares are definitely coming less often.) It will be inteseting to delve into the connection between OSA and fibro.

_________________
OSA Diagnosed: 2007
SleepyHead Software | CMS-50F Pulse/Ox


Top
Display posts from previous:  Sort by  
Print view

Who is online
Users browsing this forum: No registered users and 1 guest
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum
Jump to:  


Delete all board cookies | The team | All times are UTC - 8 hours [ DST ]

Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group
DAJ Glass 2 template created by Dustin Baccetti