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Demmom
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Fri Nov 20, 2015 10:03 pm

Joined: Fri Oct 23, 2015 12:09 pm
Posts: 176
Location: AZ
PAP Mask: Resmed F20 Air Touch FFM with travel pillow
PAP Machine: Resmed AirSense 10 Autoset
Humidifier: Built in
Pressure Setting: 10 20

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Thank you all for your comments and support. I wish I had this support 10 years ago, I might have avoided 2 stints and atrial-fibulation. Before I meet with my DME on Monday I wanted to clarify what the procedures are for ordering equipment in 3 months, 6 months, etc. Do they place any restrictions on what mask can be ordered, or any restrictions on any other items. I want to know what to expect when I meet with the DME. Each DME said that I could have 1 replacement mask in a 30 day period from the mask vendor company. Almost sounds like I can not try another company's mask product. That is worth clarifying. I do see that I can only order head gear every 6 months. Different mask company requires different head gear.

I do not know why a company would not allow mask testing at their office unless they just want to stick it to their customers. I would think that the vendors would provide them with equipment for samples. They talked about cleaning the masks and knowing what would be acceptable. One might think that they would know how to sanitize their equipment.


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Demmom
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Sat Nov 21, 2015 12:31 pm

Joined: Fri Oct 23, 2015 12:09 pm
Posts: 176
Location: AZ
PAP Mask: Resmed F20 Air Touch FFM with travel pillow
PAP Machine: Resmed AirSense 10 Autoset
Humidifier: Built in
Pressure Setting: 10 20

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My sleep study CD is supposed to be files in the EDF format. What software can access the EDF files? Oh by the way when I received the CD in the mail yesterday it is blank with no initialization or data. I have had that operational error before. Sleep techs are not IT techs but I am a computer specialist and it happens to me too.


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flyvertigo
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Sun Nov 22, 2015 9:07 am

Joined: Fri Aug 14, 2015 3:29 pm
Posts: 6

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Demmom wrote:
My sleep study CD is supposed to be files in the EDF format. What software can access the EDF files? Oh by the way when I received the CD in the mail yesterday it is blank with no initialization or data. I have had that operational error before. Sleep techs are not IT techs but I am a computer specialist and it happens to me too.



Does this help? http://sleep.partners.org/edf/


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Demmom
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Tue Nov 24, 2015 9:38 am

Joined: Fri Oct 23, 2015 12:09 pm
Posts: 176
Location: AZ
PAP Mask: Resmed F20 Air Touch FFM with travel pillow
PAP Machine: Resmed AirSense 10 Autoset
Humidifier: Built in
Pressure Setting: 10 20

Offline
Here is a little technical detail about files. The EDF (European Data Format) describes how data is structured in a data file, it is like a data template that contains all the information on how to use the data in the file. To access the data software routines are developed and placed in a library file by the software developer. These libraries may contain all types of routines that act as shortcuts for the programmer to perform required tasks. To access the data the libraries used need to be available and a data reader is needed to present the data in a form that means something to me. When I have all of these I can make some sense of the data in the file.

Wow, I finally received my Resmed AirSense 10 Autoset APAP and my Dreamwear mask(medium cushion and medium headset) and last night was my first night sleep which had some challenges and success. I had a very difficult rest in my first 4 hours. I had an 80 score in my sleep study and my wife said that I was acting like the system was not working, shaking and not breathing. She complained that the air was blowing in her face so I turned on my other side and I complained that my oral surgery made that position uncomfortable. I was told that when the ramp is in auto mode the air pressure will not begin adjustment until I go to sleep, so I turned the ramp off.

Fell asleep for about another 4 hours with great success. I have not looked at the sleep data yet. I did not notice any mask leakage and the Dreamwear was very comfortable in any position. I did not have dry mouth which I normally notice because of my chin drop. I had a very restful sleep and so did my wife. Finally success at last after almost 11 years. :mrgreen:


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sleepylynn
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Tue Nov 24, 2015 10:16 am
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Joined: Fri Oct 30, 2015 11:48 am
Posts: 81
PAP Mask: PR Dreamwear / Sleepweaver Advance
PAP Machine: Philips REMstar System One Auto A-Flex
Pressure Setting: 15

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Yay!! Best of luck getting used to the setup so you'll be able to sleep even better. :D


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TheLankyLefty
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Fri Nov 27, 2015 8:19 pm
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Joined: Mon Aug 15, 2011 10:22 am
Posts: 4650
PAP Mask: Practically tried them all.
PAP Machine: Use Phillips Respironics System One APAP with Aflex for mask testing
Humidifier: None
Pressure Setting: When testing, I use APAP with a range of 5-10

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Demmom wrote:
What software can access the EDF files?
Most sleep software. Sandman, Somnostar, Alice, Rembrandt..... You have to convert the file within their system to make it viewable. Usually (with most systems) they will have a small file that allows you to open it in a read only version of the software.

Even with all that many patients have no clue what they're looking at! :)

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Demmom
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Tue Mar 01, 2016 11:39 am

Joined: Fri Oct 23, 2015 12:09 pm
Posts: 176
Location: AZ
PAP Mask: Resmed F20 Air Touch FFM with travel pillow
PAP Machine: Resmed AirSense 10 Autoset
Humidifier: Built in
Pressure Setting: 10 20

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I just traveled down this road you are on and I documented my experiences on this forum in this post which I want to update today.

The apap equipment that I required has data storage records of daily treatment. I can capture the daily records and copy them to my computer where I run the Sleepyhead (free)software to evaluate my treatment. The newest Dream Station APAP uses blue tooth technology for data transfer(in development to work with Sleepyhead software). Resmed and other APAP manufacturers store the data on a SD storage card. Currently the SleepyHead software reads the SD card as input data. I use the Toshiba Wireless Flashair SD card with FLASHPAP software to transfer the APAP data to my computer.

CPAP is an acronym for Continuous Positive Air Pressure which is usually set at 1 pressure, bipap is set at 2 pressures. The newest machines use an Automatic adjustment to positive air pressure and are called APAP. These cost about the same and will automatically adjust the air pressure for your treatment as you sleep. They will start at a minnimum and have a maximum pressure. Sleep studies are often done using an APAP to set the treatment pressure as the patient sleeps. The recorded data is then evaluated and a minnimum and maximum pressure are determined for treatment. Many of us on this forum evaluate our daily sessions and make adjustments to improve our treatment. For example I started at 5 15. I felt oxygen starved at 5 and increased it to 7. As I evaluated my treatment my lowest level of pressure in my treatment was around 11. I incrementally increased my minnimum pressure evaluating the results and now it is at 11. I then noticed that my max pressure was regularly at 95% above 13.8. Which means I rearely go above 13.8 so I set my max pressure at 14. I have noticed about a 2 point drop in my AHI to below 2.0 and a reduction in CA events in the last 2 weeks.

I have found that the Ruby chin strap is all that I need to keep my mouth closed to prevent mouth breathing. I have tried many things to try to stop the mouth breathing. There is the adult binky, the double sided mouth guard, the side sleeper pro pillow, and regular chin straps.

I have continuous problems with mask leaks with my dreamwear mask. I have the best results when the mask is adjusted securely under my nose with little pressure. I have restless leg syndrome which keeps me on the move and puts stress on the mask which is a cause of mask leaks. I have had very heavy mask leaks with AHI staying about 2.5 so it doesn't seem to be a problem.

I get about 6 hours of great sleep every night. A lot of the events recorded show a spike preceeding the event. The spike is usually caused by me moving or coughing and the event is not valid. So my actuall AHI is at least a point lower than what is reported. 3.0 - 1.3 is the AHI range that I have had in the last 10 days.


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Demmom
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Wed Jun 15, 2016 7:20 pm

Joined: Fri Oct 23, 2015 12:09 pm
Posts: 176
Location: AZ
PAP Mask: Resmed F20 Air Touch FFM with travel pillow
PAP Machine: Resmed AirSense 10 Autoset
Humidifier: Built in
Pressure Setting: 10 20

Offline
I want to thank everyone that has had an input/response to my questions. You have been a magnificent resource and encouragement.

I am happy to say that I have found the mask fit that works well for me in the Dreamwear. I have consistently used sleepyhead SW to monitor my sleep sessions. I use the Toshiba Flash card to transmit the Resmed files over the wifi to my notebook. Works great and I don't have to move the memory card from the Resmed Airsense 10 to the computer.

I have recorded an AHI of 1 at least one day. I have an average of 2.5 AHI which is actually 2.0 with unqualified events,

I am still trying to find ways to control my body position when I sleep. I try to use the pillow to support my chin. I use a soft mattress and a firm pillow.. I tried the tennis ball attached to a t shirt and all it did was give me a back ache. I did not like the mouth piece in my mouth and stopped using it. I found that the ruby chin strap was all I needed to keep my mouth closed.

I adjusted my pressures to 11 low 14 high for the best treatments with the fewest events. I don't use any special features for ramp or startup.

I hope that this sleep apnia journey that I am journaling here will be a source of information and encouragement to all.


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TheLankyLefty
Unread post  Post subject: Re: Want to Restart sleep apnia treatment the right way  |  Posted: Wed Jun 15, 2016 10:56 pm
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Site Admin

Joined: Mon Aug 15, 2011 10:22 am
Posts: 4650
PAP Mask: Practically tried them all.
PAP Machine: Use Phillips Respironics System One APAP with Aflex for mask testing
Humidifier: None
Pressure Setting: When testing, I use APAP with a range of 5-10

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Demmom wrote:
I am happy to say that I have found the mask fit that works well for me in the Dreamwear.
That's great! I'm glad to hear that you have it dialed in. :)

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