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TheLankyLefty
Unread post  Post subject: New Surgical Treatment Options Page added FreeCPAPAdvice.com  |  Posted: Sun Oct 16, 2011 6:36 pm
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Some of the surgical treatment options are highlighted at FreeCPAPAdvice.

http://www.freecpapadvice.com/Surgical_ ... Apnea.html

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TommySea
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Thu Apr 18, 2013 9:45 am

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So Im getting ready for part 2 of my sleep test.
The 1st part indicated severe sleep apnea with and average of 31 times per hr I stop breathing.
My question is they want me to get a part 2 test to measure the pressure needed for a perscription.
What Im asking is if I have severe then why spend the money and time on part 2 and just go right to surgery to open or like I have seen on the doctors show move the obstruction?
I really do not want to hook myself up to a machine every night!
Can you give me some input..ie goods and bads of my therory of going right to sugery?
Thank You
TommySea


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TheLankyLefty
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Thu Apr 18, 2013 10:54 am
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TommySea wrote:
What Im asking is if I have severe then why spend the money and time on part 2 and just go right to surgery to open or like I have seen on the doctors show move the obstruction?
I really do not want to hook myself up to a machine every night!
Can you give me some input..ie goods and bads of my therory of going right to sugery?
Surgery is ineffective with moderate to severe sleep apnea. That's the simple and straightforward answer.

There is a 70ish% success rate in the mild sleep apnea range. Much much lower success rate for the moderate to severe range. Success is defined as decreasing the AHI by 50%. So in your case, the best you could hope for if all the planets were aligned properly, you would only stop breathing 15 times per hour, or roughly 100 times per night. Not good.....

Admittedly, CPAP sucks. It is effective though. Nothing is worse that having a painful and expensive surgery only to find that it didn't work and you still wake up feeling like crap. Now your anatomy is permanently altered.

I say give it a try and see what happens. Look at the data and charts yourself. My own father was extremely skeptical. Now he can't go a night without CPAP...he loves it because of how it makes him feel during the day. Back to tennis, swimming, scuba diving and his overall quality of life has improved dramatically.

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Cherylgrrl
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Sun Sep 22, 2013 8:49 am
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I once researched surgery and recall there were some rather unpleasant potential results of this surgery, including drooling and inability to drink liquid from a glass without dribbling. More sucky than using a cpap machine.. at least we use it in private!


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alex_357
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Mon Dec 22, 2014 3:21 pm

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I realize this is an old thread - but, let me throw in my 2 cents worth.

I had the UPPP surgery in 2006 for OSA. THAT was by FAR the most terrifyingly horrible painful surgery I've had in my life. That was miserable. I have had reconstructive bone surgery, spine surgery, fingers put back onto my hand.. etc. UPPP surgery is horribly painful, and did NOTHING but change the pitch of my snoring. I honestly believe I get sick more often now, without my tonsils.

My surgery included, removal of 3/4 of my uvula, base of tongue reduction, removal of adnoids, removal of tonsils, and widening of my throat. OMG that sucked. Couldn't sleep (duh) or eat, or drink for a week. Had to "sleep" sitting up over a trash can so my drool and "other" would drain into the trash.

There... 3 cents worth. Not worth it. I would rather stick a garden hose down into my lungs each night to keep the airway open.


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TheLankyLefty
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Tue Dec 23, 2014 9:26 pm
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Well stated.

Your comments are representative of what many have said about their experience.

In the lab we have definitely found this is true:
alex_357 wrote:
UPPP surgery is horribly painful, and did NOTHING but change the pitch of my snoring.


Well said.

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Adamsos3
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Thu Aug 06, 2015 7:35 am

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Anyone try the new Hypoglossal Neurostimulation? Hope spelling is correct! After 2 years of Bipap I am just about ready to try anything Thanks


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TheLankyLefty
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Thu Aug 06, 2015 1:53 pm
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No....but.....

You may want to do some more exhaustive research about it. A Stanford doctor who does these didn't speak real highly of these and favored the mandibular advancement as a better solution. (this was during a speech at a conference about 5-6 years ago)

You have to have this implanted in your chest with a wire running up into your....well...your hypoglossal nerve. This staying stimulated by an electrical current keeps the muscles taut and your airway open.

Bad things according to the doctor: you have "stuff" implanted in you. You have to titrate the amount of current so it's enough to keep the airway open, but not too much that you can't sleep because you have too much electrical juice running into you.

What's going wrong with BiPAP?

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49er
Unread post  Post subject: Re: New Surgical Treatment Options Page added FreeCPAPAdvice  |  Posted: Sun Sep 06, 2015 5:59 am

Joined: Wed Aug 19, 2015 9:22 am
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Actually, it looks like the THN Sleep Study, which is similar to the Inspire Treatment may be gentler.

http://thnstudy.com/

By the way, I know which surgeon you are talking about and if I were to have MMA, I would definitely want him to do the surgery even though that wouldn't be realistic. So obviously, I have of respect for him.

But everyone has their biases and it looks like these types of treatments are appropriate if tongue collapse is the main issue and you have given pap therapy every possible try to no avail. It also is alot less invasive than the MMA.

I am not yet at the point of choosing surgery but after a nearly 4 year struggle with pap therapy that has been an exercise in futility big time, I am getting close to that point.


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